Clinical and Leadership Responsibilities1.1. Work as part of a team of nurse specialists; this may involve leading on particular aspects of care with the support of senior colleagues. This will include covering the work of others in their absence.1.2. Maintain and ensure accurate patient records in accordance with Trust policies and procedures. For example; at all times to comply with the Information Governance Code.1.3. Lead on some programmes of care and manage a caseload of patients as part of the team ensuring these are quality assured, evaluated and improved as appropriate.1.4. Document the condition and progress of children and young people and liaise with senior staff re any areas of concern1.5. Manage data collection and inputting of data for commercial growth hormone study. 1.6. When required, and as agreed, with other senior staff deliver care within community settings for example at the childs/young persons home or at school.1.7. Work within the Medicines Code of Practice and comply with all Trust policies with particular regard to those maintaining patient and staff safety.1.8. Liaise with other clinical areas providing appropriate policies, education and clinical expertise in order to facilitate the management of patients with special requirements.1.9. Co-ordinate care for children and young people with an endocrine diagnosis as part of the team, including those who may not have a definitive endocrine condition but are being managed by the endocrine team.1.10. Support children young people and their families / carers through their care pathway including diagnosis, treatment induction, and liaison with community professionals for example: GP, School Nurse, Health Visitor, teacher, or social care. Including provision of ongoing management and disease monitoring.1.11. Have a detailed understanding of the medications used in paediatric endocrinology.1.12. Gain the relevant knowledge and be competent in the process for blood monitoring for patients; understanding and advising re normal / abnormal values. Undertake any actions required if abnormal results received.1.13. Plan care and facilitate ward staff to manage patients requiring care within the acute health settings: Outpatients, Day Care, Wards and the Medical Investigations Unit.1.14. Plan, as part of the team, the discharge procedure for children and young people admitted to hospital with endocrine conditions. Liaise as appropriate with community nursing teams regarding care within the community.1.15. Involvement in the orchestration of medications and care via the Trusts preferred Home Care Company. To facilitate the delivery of endocrine therapies directly to the family. This involves; registering patients, monitoring supplies, facilitating prescriptions, as appropriate requesting medical devices, together with discussing the delivery options open to families. Being mindful to involve families in the process.1.16. Manage patient enquiries and concerns; seeking support and advice from members of the team as needed, whilst ensuring effective communication and documentation.1.17. Provide support and explanation for children / young people duringtransition. This includes liaising with teams in nursery, school and into adult care.1.18. Lead teaching sessions, including demonstrations of clinical procedures, for nurses and other members of the multi-disciplinary team.1.19. Act as an advocate for the child/young person and share good practice and innovation with colleagues across the service.1.20. Comply with all Trust policies and risk assessments and be able to conduct clinical supervision of junior colleagues1.21. Become competent at phlebotomy and cannulation.2. Research and Development2.1. Promote and practice evidence based nursing care.2.2. Promote professional practice in line with relevant research.2.3. Maintain a detailed awareness of the developments in the care and treatment of patients in order, to be able to carry out duties competently and efficiently2.4. Actively participate in research studies that are being undertaken by the paediatric endocrine service, ensuring that the nursing input is in accordance with International Good Clinical Practice guidelines3. Communication and Relationships3.1. Maintain communication with service managers and other stakeholders in facilitating the service offered to this patient group.3.2. Be a role model for others to emulate, working alongside colleagues and exhibiting high standards of professional behaviour and dress.3.3. Liaise with ward staff offering placements to students and insight visits to newly appointed staff.3.4. Collect data relating to patients referred to the nursing service and support the collation of that data into the development of an annual report.3.5. Be aware of the need for confidentiality both within the written andspoken word and ensure correct storage of patients records at all times to comply with the Information Governance Code.3.6. Support the information and education of children, young people and their families / carers about their endocrine condition and its management3.7. Be able to explain reasons for various treatment options to children, young people and their families including preparation prior to procedures and follow up care and drug regimens4. Management Responsibilities4.1. Ensure delivery of care in accordance with policies, procedures, guidelines and practices of Nottingham University Hospital Trust and ensure all junior staff and medical staff are up to date with such procedures.4.2. Seek the views and monitor the needs of the client group in order to formulate the strategic development of services for children and young people with endocrine conditions.4.3. Work with the Childrens Services shared governance framework to introduce agreed procedures and practices to improve the care of children with endocrine and associated conditions.4.4. To demonstrate a sound awareness of practise within a framework of Clinical Governance and Risk Management4.5. Report complaints, incidents and accidents in line with the Trust incident reporting process.4.6. Ensure that the clinical environment is safe and adequately equipped and maintained, take any immediate necessary action and report any deficiencies accordingly.4.7. Report feedback from parents on their experiences including medical equipment and action as appropriate ensuring patient safety is maintained.4.8. Use resources effectively in order to provide quality patient care whist having an awareness of budgetary issues.5. Education Responsibilities5.1. Demonstrate the skills and knowledge to act as a specialist resource toother members of the multi-disciplinary team.5.2. Develop and maintain nursing guidelines, care plans, parent information and information relevant to this patient group.5.3. Be competent in the administration of intramuscular, sub-cutaneous and intravenous therapies and maintain competence.5.4. Comply with the Trusts training and development policies and procedures6. Key Result Areas6.1. Be aware of the need for own personal development and be prepared to attend and undertake any necessary training.6.2. Contribute towards and when necessary lead the development of the clinical environment conducive to continuous improvement and development and help to ensure all members of the team are included; able to discuss ideas and actions and showing initiative.6.3. Assist in the regional development of the service working with senior colleagues as required6.4. If required represent the service nationally and in publications6.5. Actively facilitate Patient Partnership, in service evaluation, development, design and communication which involves children, young people and their parents/carers