Job summary
THIS POST IS SECONDMENT FOR 2 YEARS DUE TO THE NEEDS OF THE SERVICE.
IF YOU ARE INTERESTED IN APPLYING FOR THE SECONDMENT POSITION, YOU MUST OBTAIN PERMISSION FROM YOUR CURRENTLINE MANAGER PRIOR TO APPLYING FOR THIS POST.
The Rare Disease Implementation Network has been developed to support the UK Rare Disease Framework. This Framework is supported by the Welsh Government and enables collaboration across all four nations to improve the care provision of those impacted by Rare Diseases.
The four priorities detailed in the framework are:
o Priority 1 Helping patients get a final diagnosis faster.
o Priority 2 Increasing awareness of rare diseases amongst healthcare professionals.
o Priority 3 Better coordination of care.
o Priority 4 Improving access to specialist care, treatment, and medicines.
The Wales Rare Disease Action plan sets out 42 actions, that supports the implementation of these priorities, based on our clinical understanding, patient and public engagement and data sources. This plan is refreshed and reported to our partners each year.
As the clinical lead, these actions will become the measure for implementation planning. Working with multiple NHS And non-NHS partners, academia, industry and those impacted by Rare Diseases, collaboration and partnership is key to our progress.
Main duties of the job
The post holder will have responsibility for clinical leadership, advice and engagement. Key aspects of this role will be to:
To provide professional and clinical leadership for the Implementation Network
To provide clinical advice and scrutiny to constituent provider organisations on the activities and required support to deliver the objectives of the Implementation Network.
To communicate the Implementation Network's focus on quality and outcomes from national through to local level, allowing the local teams to feed ideas and input back to the Network and NHS Executive as appropriate.
To provide leadership for improving and safeguarding quality.
To prioritise, develop and promote high level national health & care pathways
To challenge organisations and clinicians around the timely adoption and implementation of best practice that will support elective recovery.
To support national strategic / policy thinking regarding the speciality
Supporting and implementation associated with relevant regional working opportunities that will facilitate more timely care to patients
To support the principles of the National Clinical Framework (NCF) and its delivery in Wales
About us
The NHS Executive works in partnership for and on behalf of Welsh Government, in and with the NHS in Wales and is hosted by Public Health Wales.
Our key purpose is to drive improvements in the quality and safety of care - resulting in better and more equitable outcomes, access and patient experience, reduced variation, and improvements in population health.
We do this by providing strong leadership and strategic direction - enabling, supporting, and directing NHS Wales to transform clinical services in line with national priorities and standards.
To find out more about working for us and the benefits we offer please visit
For guidance on the application process, please visit
Job description
Job responsibilities
The Implementation Network for Rare Disease will be retained under the umbrella of the Rare Disease network.
You will be able to find a full Job description and Person Specification attached within the supporting documents or please click Apply now to view in Trac.
The ability to speak Welsh is desirable for this post; Welsh and/or English speakers are equally welcome to apply.
Person Specification
Qualifications and Knowledge
Essential
1. Qualified healthcare professional with registration with appropriate body.
2. Full UK clinical accreditation and holding a substantive Medical, surgical or Nurse/Clinical Practitioner post in Wales.
3. Significant experience in the service area.
4. Enhanced knowledge of the service area within Wales.
5. Good understanding of clinical governance.
Desirable
6. Relevant professional registration.
Experience
Essential
7. Managing and chairing groups.
8. Working with key stakeholders.
Desirable
9. Recognised lead in the service area.
10. Experience in post-graduate /multidisciplinary education.
11. UK and international experience working within the service area.
12. Research experience.
Skills and Attributes
Essential
13. Competence in clinical management.
14. Sound judgment and decision making.
15. Proven ability to manage complex work and prioritise effectively.
16. Ability to develop effective working relationships on an individual and multi-disciplinary basis.
17. Ability to maintain CPD to a high standard.
18. Proven ability to work as part of a multi-disciplinary team.
19. Excellent communication & organisational skills.
20. Proven leadership abilities.
Other
Essential
21. Willingness and ability to travel.