Support patients and their families at the time of diagnosis, progression of illness and pre and post bereavement, in conjunction with the clinical psychologist. Formulate individual management plans, including Advance Care plans and Emergency Care plans for Neuromuscular patients. Evaluate and modify management plans according to patient needs. Provide spontaneous and planned advice on housing, adaptations, care packages, education, employment, and equipment. Work autonomously and collaboratively with other members of the neuromuscular MDT Complete home visits, and/or hospice, other hospital visits as and when required The postholder will have the ability to support patients using cough assist, non-invasive ventilation and sleep monitoring equipment. Organise and participate in nurse led clinics including mobile muscle clinics, and symptom control clinics. With other members of the clinical MDT organise and support patients undergoing muscle investigations including neurophysiology, muscle biopsies, spinal surgery and sleep studies. Liaise with and make referrals to other health professionals across primary and secondary care such as community nurses, therapists, GPs and consultants. Act as a key worker for children/adolescents and adult patients whilst undergoing care at RJAH, other hospitals, community and hospice settings across the tertiary area. To help and support transition pathways across paediatric and adult services Provide accurate and detailed assessments/ reports by utilising excellent clinical knowledge and physical assessment skills. Be able to request routine investigations including blood sampling. Attend MDT meetings weekly and be able to present cases and discuss management plans Recognise and identify vulnerable children and adults, making referrals and liaising with the relevant safeguarding Trust leads. Participate in safeguarding meetings and as when required. Attending child death overview panel (CDOP) meetings as and when required. Communicate effectively using advanced skills to overcome any barriersParticipate in neuromuscular research and apply research findings to nursing practice. Active participation in local and national conferences in order to share knowledge to others and learn from others. Assist the senior CNS with the development of policies and procedures for the management of patients with neuromuscular conditions.