We are at a pivotal moment in our journey. Our new strategy, developed in collaboration with the myeloma community, alongside clinical, research, and policy leaders, focuses on three core areas: preventing myeloma, treating myeloma, and living well with myeloma. In the first year of this strategy, we have already made significant impacts: Convening global leaders in early-stage myeloma to investigate prevention, securing the provision of three next-generation treatments on the NHS, and launching the Myeloma UK Survivorship grant of up to £170,000 to fund research into improving patients' quality of life. There is more work and achievements to come.
We're enhancing our ability to address emerging and unmet needs while implementing comprehensive plans to reach more people, improve engagement, and grow our income as right now, the vast majority of our income is from donations. Through our innovative research programs, advocacy work, and comprehensive support services, we unite researchers, healthcare professionals, and patients in our mission to find a cure while ensuring no one faces myeloma alone.
About the role.
We're seeking a Trustee to join our Board in 2025 and assume the role of Treasurer in 2026 as our current Treasurer ends his term in 2026. As Treasurer, you'll play a crucial role in leading Myeloma UK into the next stage of our development, providing strategic financial leadership during an exciting period of growth and change. You'll lead the Board's duty to ensure financial resources are controlled, invested, and economically spent while advising on the financial and risk management implications of our strategic plans.
Working closely with our Chair, Board, and executive team, you'll take an active role in our governance structure, including chairing the Finance and Audit Committee. You'll build an effective relationship with our CEO and Director of Finance, providing both challenge and support as we pursue our ambitious goals., The role offers a balanced mix of virtual and in-person engagement designed to maximise effectiveness while being mindful of trustees' time. The Board meets quarterly, with two online meetings (approximately 3 hours each) and two significant in-person gatherings that form the cornerstones of our governance calendar. Our November board meeting is in London and includes a full-day session where we engage in board development and conduct strategy sessions. The second in-person meeting takes place in Edinburgh each May - a rich, one-and-a-half to two-day residential event combining formal board meetings with strategic planning, board development work, and our annual staff awards celebration.
As Treasurer, you'll chair the Finance and Audit Committee, which meets online four times a year. Traditionally, there's also a monthly catch-up with the Finance Director - this can be conducted virtually or in person, depending on location and preference. Overall, including reading board papers and ad hoc conversations, we expect the time commitment to be the equivalent of a day a month.
We provide comprehensive onboarding support, which can include listening to our Information Line calls to understand our frontline services, briefing sessions with Executive Leadership Team members, and deep dives into our research and services - all designed to bring our mission to life and ignite your passion for our cause.
This is an unremunerated voluntary position, though reasonable expenses, including overnight accommodation for the Edinburgh meeting, will be reimbursed.
Ideally, you will bring substantial experience in commercial and financial management at a senior, strategic level, either as a finance professional or a senior business leader with financial and investment expertise. You'll have experience chairing meetings and an excellent understanding of best practices in governance. Your personal and professional credibility will command confidence with the Board and stakeholders.
Most importantly, you'll be collaborative and highly inclusive, fostering trust and valuing different perspectives throughout with a strong commitment to equity, diversity, and inclusion. You'll ensure all voices are heard and respected. Your unwavering dedication to fostering an equitable environment will enhance our board culture.
We're looking for a clear and independent thinker with sound judgment and an appropriate approach to risk. Your excellent influencing and negotiation skills will be complemented by your solution-focused mindset and ability to see the big picture while remaining pragmatic. As an intellectually curious individual, you'll be comfortable navigating complexity while building strong relationships through your high emotional and cultural intelligence.
Experience serving on the Executive Leadership Team of a growing organisation would be valuable, as would prior experience as a charity Trustee. An appreciation of the wider health, social, and political landscape, along with knowledge of charity fundraising practices, would be advantageous.
Time commitment.
At Myeloma UK, we are making it possible to live longer and better lives with myeloma. Through research and treatments, we find new ways to a cure. As the only UK charity focused exclusively on myeloma and related conditions, we have transformed treatment and care over the past 25 years, helping quadruple life expectancy for many patients. But we need to go further, faster - because people with myeloma can't wait. We are uniquely placed as an organisation to improve the lives of people affected by myeloma by investing in innovative, life-changing research, advocating for patients to get access to new treatments on the NHS, and providing free information and support services to patients and their families., Join us in our mission to transform the lives of people affected by myeloma. Together, we are the cure.