Core Responsibilities Managerial: 1. Works collaboratively with the Alexanders Care Team to develop and maintain a strategy that meets the needs of children and families. 2. Works both as an independent practitioner, and as an effective member of the wider interdisciplinary clinical team. 3. Maintains high quality in all areas of work and practice, supporting the development of quality in the organisation. 4. Participates in all areas of audit and risk management and uses data from audit/quality monitoring/patient satisfaction questionnaires/service review to inform clinical governance and service improvement. 5. Ensures patients are consulted in the development of services and utilises information to ensure that services are responsive to patient needs. 6. Is responsible for ensuring own clinical practice complies with Data Protection, Confidentiality and Caldicott principles. 7. Actively promotes diversity, in the delivery of services, in the development of staff and within the organisation. Supports and sustains relationships that promote dignity, rights and responsibilities. Identifies and takes action to address discrimination and oppression. 8. Monitors and maintains the health, safety and security of self and any practitioners he/she is responsible for in work area. Identifies and assesses risks in work activities, and develops strategies to manage these effectively. Practices within risk management/occupational health legislation and Organisational procedures. 9. Develops own skills, taking responsibility for continuing professional development and performance, maintaining own portfolio in accordance with post registration requirements. Works to achieve competencies appropriate to grade and role. Identifies own development needs in relation to current practice and future plans, setting personal development objectives. 10. Represents Alexander Devine Childrens Hospice Service [ADCHS] at interagency meetings as requested. 11. Demonstrates commitment to the values of ADCHS and the ethos of hospice care. 12. Actively promotes Alexander Devine Childrens Hospice Service and supports the development of childrens palliative care across Berkshire. 13. Contributes to fundraising initiatives for the ADCHS. Clinical: 1. Holds own defined caseload and Works flexibly to support 24/7 rotas, emergency and end of life care. 2. Communicates complex, sensitive information effectively and empathetically to patients and relatives, managing difficult situations and maintains the highest standards when communicating with children, families and the wider public. 3. Completes and maintains up to date records in line with principles of best practice. 4. Actively manages assessment, evaluation and the delivery of care, promoting all elements of high quality care planning. 5. Leads on developing the health component of the care package for the family working with other agencies to develop a holistic package. 6. Supports families throughout the care pathway including initial diagnosis and discharge planning form hospital to community. 7. Works flexibly to plan appropriate intervention where there may be escalation of symptoms or family difficulties and offers support to families as needed. 8. Checks and administers medication to children in their own home in line with ADCHS Medicines Management policy. 9. Works as an expert practitioner in palliative care acting as a resource for other healthcare professionals. 10. Assumes a central role in problem solving and service co-ordination to ensure patients and carers receive high standards of seamless quality care. 11. Works with non-specialist interdisciplinary practitioners to complement their care, and the quality of the service provided. 12. Actively participates in interdisciplinary meetings. 13. Acts on clinical incidents pertinent to area, to reduce clinical risk. 14. Is familiar with ADCHS safeguarding policy and report any concerns accordingly. Teaching, Training and Research: 1.Establishes local and national networks, linking with other practitioners in specialist area in order to share/learn from examples of good practice. 2. Provides informal support and education to patients/carers and all professionals as appropriate. 3. Participates in the delivery and evaluation of formal education programmes related to palliative and end of life care. 4. Identifies and plans education, participating in planning and delivery. 5. Conducts/facilitates primary research/contributes to research programmes. Promotes evidence based practice in palliative and end of life care. Is aware of clinical trials that may affect patients in own clinical area. 6. Uses reflective practice, evaluation and research findings critically to contribute to the improvement of services. 7. Provides formal mentorship and clinical supervision to other members of the Alexanders Care Team. 8. Develops specialist policies, guidelines and care procedures for the organisation and supports the development of care pathways. 9. Develops and contributes to an information database of support services available to health care professionals and patient group.