This is an exciting opportunity to support adults with Motor Neurone Disease (MND), who live in Lincolnshire. As part of service transformation work, we have recognised the need for an autonomous decision maker that can work across services to provide a link to the acute sector, specialist centres, local charities, the voluntary sector and other key stakeholders. As a new post, the successful applicant must have the necessary skills and be willing to support the senior leadership team with developing metrics, audit and service reviews.
Main duties of the job
The post holder is responsible for the specialist care provision for patients in Lincolnshire with a progressive, life-limiting neurodegenerative disorder for which there is currently no curative treatment.
To co-ordinate care and services for patients to ensure that they and their carers receive the highest quality of care, support and experience, within agreed protocols and allocated resources, together with other members of the multi-professional team. This includes working with colleagues from Neurology, Respiratory, Speech and Language Therapy, Dietetics, Palliative Care, Specialist Community Neuro Physiotherapy & Specialist Community Neuro Occupational Therapy, third sector partners including the social care services, hospices, and charities such as the Motor Neurone Disease Association (MNDA).
Job Responsibilities
1. To enable patients with MND to have a single point of contact to reduce stress, carer burden and improve communication across systems and sectors.
2. To work collaboratively to develop expertise and resources to provide sound clinical advice and judgement to patients and their families, and other health and care professionals.
3. Attend and co-ordinate clinics and MDTs.
4. To provide home visits to enhance early monitoring and anticipatory care planning and support access to appropriate psychological support.
5. To monitor local provision against relevant best practice guidance, working as a colleague within Neuro-Outreach Team, Specialist Palliative Services, other Community Services and with neurological specialists nationally.
6. To manage an active caseload of people with MND, throughout their disease pathway, working with patients and their carers to coordinate the provision of interventions, create self-management plans to optimise health and quality of life, and reduce avoidable hospital admissions.
7. To recognise new symptom onset, and liaise when indicated with other services to ensure appropriate medical or specialist support is provided.
8. To act as a representative or advocate for patients when required, ensuring that mental capacity is assessed and engaging in best interests meetings where appropriate.
9. To work in collaboration with patients and their carers, GPs (General Practitioners) & Hospital Consultants to achieve optimum therapeutic benefit from medication and treatment regimes.
10. To discuss Advance Care Plans including identification of Preferred Place of Care (PPC), Advance Decisions to Refuse Treatment (ADRT) and undertake ReSPECT authorship with specialist Palliative care support.
11. To work with the Health & Social Care professionals across a variety of settings (e.g. acute trust, hospice) to offer support, education, and advice in the management of MND.
12. To link in and work with the MND Association and other relevant agencies to ensure integrated care for the patient.
13. To support the multidisciplinary team to provide specialist care to patients with MND.
14. To share expertise which is relevant to other long-term neurological conditions with other members of the MDT (multidisciplinary team) where appropriate.
Professional
1. To be pivotal in the development and review of local evidence-based standards, policies and guidelines based on NICE guidelines, current research and benchmarking of the speciality.
2. To develop and deliver education and training relating to specialist area - for the MDT, for other health and social care professionals and for people affected by their condition and carers.
3. To participate in implementing national standards and frameworks at a local level within the speciality.
4. To undertake research and audit, review, and evaluation of the service.
5. Be able to undertake Quality Improvement and feedback effectiveness at board level.
6. To develop knowledge and up-to-date, evidence based practice in MND.
7. To take part in local and regional support networks such as SNAP (regional forum for specialist nurses and Allied Professionals).
8. To use effective prioritisation, problem solving and delegation skills to manage time effectively.
9. To familiarise yourself with guidelines and regulations relevant to the role, particularly those relating to health and safety at work, and governance, and ensure they are always met.
10. Be pivotal in the development and review of policies and guidelines based on best practice research and benchmarking for the speciality.
11. To comply with the Data Protection Act 1998.
Managerial
1. To utilise patient and carer feedback, learning from their experiences to continuously improve quality and delivery of care.
2. To develop and maintain a peer network of support, information and learning with other specialists across East Midlands.
3. To work as part of the community team for peer support and supervision.
4. To act as a resource for the relevant supporting teams within Lincolnshire.
5. To maintain appropriate professional links with other health and social care agencies.
6. To report incidents, concerns, or complaints to your line manager in a timely way, ensuring the optimum safety and wellbeing of patients, their families, and colleagues.
7. To adhere to the lone working policy and procedure when working in the community.
8. To preserve the confidentiality of any information relating to patients, staff, or the organisations business.
9. To engage with line manager for regular reviews against objectives and keep oneself professionally updated.
Training and Development
1. Influence the development of knowledge, ideas, and clinical practice.
2. To provide specialist education, advice, and support to colleagues within the organisation and external organisations, who support and provide care for patients with MND.
Person Specification
Qualifications
Essential
* HCPC Physiotherapy/Occupational Therapy or NMC registration
* Valid full UK licence with confidence to drive in rural locations
* Evidence of Leadership and Management development
* Experience of community working
* Practical and theoretical knowledge of working within a rehabilitation service
* Evidence of continuing professional development relevant to post
Desirable
* Membership of Specialist Section for Neurological Practice
* Post qualification training related to Neurology
* Completion of Professional Practice Placement Educator Qualification
* Masters Degree module or evidence studying for
* Management/ Leadership qualification or evidence of studying for one
Previous Experience
Essential
* Experience of working with patients with MND
* Experience of working at band 6 level in the community
* Significant previous experience in neurological rehabilitation
* Previous experience of data collection and audits
* Previous experience of administering and analysing a range of outcome measures within Neurological rehabilitation (including a variety of cognitive and perceptual assessments)
Desirable
* Experience of meeting targets and delegating tasks
* Experience working within a MDT in a senior role
* Previous experience of report writing
* Experience of supervision and appraisal
* Experience in use of a variety of IT packages such as Excel and Word
Evidence of Particular Knowledge, skills, aptitudes
Essential
* Able to demonstrate recent innovative practice
* Able to work flexibly across service areas to enhance quality of service provision
* A degree of agility and the ability to manoeuvre light to moderate loads
* Knowledge and understanding of Governance issues including the principles of risk management
* Basic theoretical knowledge of anatomy, physiology, psychology, medicine, surgery and respiratory function
* To be able to have challenging/sensitive conversations
* To be aware of and use non-verbal methods of communication
* Good understanding of MND, other neurological conditions and complex disability
* Understand the importance of data collection and statistics and use the information in planning and providing services
* To share and discuss condition related information including sensitive and prognostic information with patients
Desirable
* Experience of Team Management
* Experience of leading and implementing change
* An awareness of local involvement in current NHS issues and relevant Framework/quality indicators
* Knowledge and experience of therapeutic interventions for MND
Employer details
Employer name
United Lincolnshire Hospitals NHS Trust
Address
Pan Trust
Lincolnshire
LN2 5QY
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